Second Graders!

Ethan and Dylan started 2nd grade yesterday. This year they are in the same school and the same classroom and they are sitting in desks now. They are getting so big.
I was really nervous for Dylan. He has been in a completely different classroom environment up until now. And this is all such a big change for him. Plus, even though the seizures seemed to have all but stopped, his behavior problems have not. I guess he caused quite a stir in the classroom today and Ethan fed on Dylan's behavior and acted up, too. The teacher knows Ethan from last year and she was really suprised at the way he acted. I hope Dylan gets into the routine. He looked absolutely stunned when he walked into that classroom. I really feel for him. So keep them both in your thoughts, please. I would really appreciate it.

til later....

News

My mom is doing ok after her hip surgery. She did need a couple transfusions before they moved her to PA Peterson and that delayed her move by one day. She has physical therapy everyday, but is not sleeping well due to the foam wedge they have between her legs at night. Please continue to keep her in your thoughts and prayers. Thanks!

We took Dylan to a neurologist Monday. She is not a ped neuro but she can see children. Anyway, it is her opinion that Dylan is not having petit mal seizures but partial complex seizures (I think I got the name right). I guess with petit mal, most kids are only out a second or two and then continue with what they were doing with no confusion or memory of anything happening. Dylan has been just spacing out for much longer than a second or two. He is confused and upset when he comes out of it and he sleeps for a long time which is another symptom of partial complex and not petit mal. She wants him to see a ped neuro from Children's Hosp in Oakland, especially because Dylan's language and comprehension skills regress during this time. I have no idea how long the referral will take. They were supposed to send it in this afternoon. Again, I'll keep you posted.

The new school year is looming in front of us. I register the boys on the 22nd and they start school on the 29th. I have asked the teacher if we can meet with her before school starts. Ethan has met her before but Dylan hasn't. Plus Dylan will be changing schools so I want to get pictures to do a social story for him. I hope it works out for both of them to be in the same classroom. Ethan is so eager to jump in and answer questions for Dylan. We are meeting with the SD 30 days after school starts to review the placement.

Well, that's all the news that's fit to print.

til later....

It Finally Happened...

Ethan finally lost his cracked, black front tooth! Well, he didn't really "lose" it. More like he pulled and twisted and yanked while it bled all over the place and came out. I am so happy to see (or not see) that thing gone. And I'm so glad he won't have to be put under and have it pulled. Yippee!

That's the good news. The bad news is that Dylan started having petit mal seizures again. They started before summer school ended. We noticed the unusual behaviors about the same time his teacher and his behaviorist did. Almost the same time as last year. We've been to the pediatrician and his psychiatrist who monitors his meds. And we are still trying to get him into the neurologist. It takes so long to get to see one. There just aren't that many pediatric neurologists, Stanford and Children's Hospital are the closest, but that doesn't mean you get in to see them quickly, even though Children's has a satellite office in Pleasanton. We'll keep you posted.

Just got a phone call from Lou that my mom came through her hip replacement surgery very well. The doc was pleased with how things went. No excess bleeding, no transfusion needed. She was still in recovery when we talked, but she will be at OSF for the next 3 days and then will move to PA Peterson for recovery and therapy. Please keep her in your thoughts and prayers. She made it through the surgery, but has a long road of recovery ahead of her. Thanks!

Well, that's about all the news from here.

til later...