Last night while typing on the laptop, Dylan sat next to me on the sofa and laid his head across my hands on the keyboard. He was hot. Even though he had no cough or sniffling, he had been lethargic all day and zoning out a lot (at one point we thought he was having a seizure). Tod laid him on the sofa and covered him up. Dylan was already moaning by then, typical flu symptoms. Tod got out the thermometer and sure enough, the thermometer was broke. He got the Tylenol anyway. We knew it was going to be a long night. Our pediatrician tells us to alternate Tylenol and Motrin during times of spiked fever. It has decreased the number of times we've had to use cold compresses or frozen vegis to bring a dangerously high fever down. And it keeps him from getting too uncomfortable with body aches and chills.
Tod was with him all night. I was up, too, but in the other room. You see, I just got out of the hospital after being incarcerate for double pneumonia. I was under quarantine, too. And although I am taking enough antibiotics to clean up Congress (and maybe Sacramento, too), I have no defense against a viral infection. I could end up back in the hospital in worse shape than I was before. Then I become a burden and not a help.
But, I'm the mom! My poor baby needs me! How can I sit by helplessly while he's sick? Not that Tod isn't doing a great job. But, I"M THE MOM! I remember reading somewhere that your child will always remember how you treated them when they were sick. I remember my mom- gently putting in eardrops, letting me eat chicken noodle soup on a tv tray in the living room. Comforting me when I broke out with chicken pox. I knew it was ok when I puked because mom wasn't scared. And then there were those sweet kisses on my forehead to check my temperature. How can I deprive my child of this?
Well, I'm not, as safely as I can. By washing hands, letting Tod distribute medicine, using TraderJoe's hand-sanitizer and continuing to do all the things I need to do for my recovery. Oh, and this....
While I enjoy facebook, with it's quick way of catching up and how it keeps you in touch with the immediate of people's days, I tend to want to pontificate more. So here I am, blogging again over three years after my last post. I've got the time and words are constantly rolling around in my head. Once again, you have the opportunity to peek in my windows. After this long, most of the blinds are bent and broken & the view can be a little obscure, but you are welcome to look in.
Tuesday, November 16, 2010
Wednesday, August 01, 2007
Hell Hath no Fury like Pleasanton Scorched!
I actually thought we might miss the Sahara showing up with it's luggage this Summer. We had days and nights of no air conditioning. Mornings when you picked up your newspaper and stopped to smelled the chill in the air. You could actually walk across the patio in bare feet to drag your children off the swings for dinner. Well those days are gone and true Pleasanton summer is here. This is the only part about Pleasanton I don't like. In the summer it's hot, it's a dry heat, it doesn't matter, I hate it.So out comes the pool from last year and, hey, it's got no holes! "Pip" and "Pop" are thrilled except that Dad threw away all the cool pool toys. Sooo we all hop into the van in search of pool toys at the end of the pool season. We found a couple at ToysRUs and then mom has a great idea The Dollar Store! We find all kinds of toys at The Dollar Store and, guess what? they're a dollar! Back home "Click" and "Clack" play and play until bedtime. Dad wants to clean the pool, so he drains it but doesn't put it away. The next morning "Remus" gets out the patio door (scary enough, we've already fixed that) and thinks it's fun to drag the pool all around the yard and the patio. Now it's full of holes and tears. This late in the season, we can't find the right size patches, so now we have a bunch of pool toys and no pool. Back out to ToysRUs for a pool.
If it's the end of the season and School Supplies are crowding the aisles, why are pool supplies so expensive?? It doesn't matter. When you hear "Monkey See" and "Monkey Do" giggle until they can't stop, who cares? When you see the shocked look on "Romulus'" face when he accidentally falls in face first and then the big grin that follows. It just doesn't occur to you to ask your spouse, "well, gee, honey, what do you think? Should we get it?" You just do it without batting an eye like letting the Sahara stay in your guest room for the Summer.
til later...
Friday, July 27, 2007
Say It Ain't So!

Poof Ball
I sent these pictures out via email just a couple days ago. The boys LOVE this ball. Aunt Tanya sent it for Christmas and it is so fun for them and so good for them. OT's love it because it offers compression and bouncing for loosening of joints. It relaxes them and "centers" them so they can concentrate on their work. And of course the boys just think it's fun. After a while it got a hole in it and dad patched it a couple times, but they still found new ways to play with it every day.
Well about 5 minutes after I hit the send button to send the pictures of our favorate toy, the patio door opened and my 3 boys came in whining. "Mo-oooom, it brooooke!" And indeed it had. Ripped from stem to stern. Ethan wanted dad to fix it with the hole fixer and air pump, but that just wasn't gonna make. Finally Dad was able to distract them to the Kangaroo Balls, whispering on his way out the door, "get on the internet and FIND ANOTHER ONE! NOW" So I did and it's supposed be here sometime next week. I just hope we can last that long. Every day the boys ask, several times, to "please play Poof Ball". Poof Ball: The ball is a little deflated. Dad puts weight on one side of the ball, one of the boys sits on the opposite side. All on a sudden dad presses hard on his side and boy "poofs" up in the air! (see pic above)
til later.....
Sunday, June 03, 2007
Six Long Months

It's hard to believe it's been 6 months since I last posted to this blog. I'm sure most of you have abandoned it. Our life has been difficult with Tod being out of work since October. I haven't felt much like posting because it all seems to be bad news on top of worse. But the reason I started this blog was to keep in touch with friends and family back home, to let everyone know what's happening in our lives and to keep myself connected. I've realized that these are things I desperately need to do. So I am going to try.... as much as I may not feel like it. Right now, here are some good things happening:
Tod has been interviewing with Gateway computer and it looks promising. We don't want to get our hopes up, a lot of jobs have looked promising. This one would mean a move to southern califonia. The boys would like it, the beaches are much calmer for swimming and depending where we lived we could hear the fireworks from Disneyland every night. We are getting closer to getting meds worked out for Dylan and his seizures and night time rages. We're all getting a littler more sleep. Yesterday Tod and I got to see Pirates of the Caribbean. Our sitter gave us movie passes on our anniversary. I was fun to go out on a real date! My mom is doing much better and hopefully will be home from the nursing home in a couple weeks. And I have a doctor's appt. Friday, so maybe I can finally find out what this stomache problem is.
til later.....
Saturday, December 30, 2006
Quick Updates & Slideshow Links
Very quickly..... the boys turned 8, Christmas came and went, Tod still doesn't have a job although he has a 4 day gig in Mtn View on the 9th. We survived the year.
That covers the updates here are the links to birthday and Christmas Slideshows.
http://smilebox.com/play/4d7a41784f5459790a&sb=1
http://s107.photobucket.com/albums/m308/hunnyJbunny/?action=view¤t=christmas2006.flv
til later....
That covers the updates here are the links to birthday and Christmas Slideshows.
http://smilebox.com/play/4d7a41784f5459790a&sb=1
http://s107.photobucket.com/albums/m308/hunnyJbunny/?action=view¤t=christmas2006.flv
til later....
Monday, November 06, 2006
Blatant Self Promotion or a Really Great Deal?
A Really Great Deal?
or just plain groveling?
HOLIDAY SALE!
or just plain groveling?
HOLIDAY SALE!
HALF PRICE!
HALF PRICE!
HALF PRICE!
Take a look around, and pick out something
for yourself or as a gift!
The discount will be taken at checkout, if you use Paypal.
Otherwise email me and we'll work out another way of paying and
I'll send out your jewelry.
This is a great opportunity to start (or finish) your Holiday shopping!
If you are not into jewelry,
check out my Autism Stuff Store at Cafe Press
Not only is there autism related stuff,
BUT I've put some of the boys' holiday artwork on
Cards, Sweatshirts, Ornaments, Teddy Bears, etc.
Now, the important stuff...
We took Dylan to another Dr. and all the Drs conferred and started Dylan on a new medication. He's only been on it a couple days, but he seems calmer and more coherent and we haven't seen any seizures, so we are keeping our fingers crossed. He is still having some emotional outbursts, though....I don't know if those ever stop.
Tod had a second interview for the job in Fresno. They are going to set up the 3rd one which will be in Fresno with the director of the department, but it won't happen until after Thanksgiving. The guy who interviewed Tod both times told Tod that everything is still in it's early stages and not to expect anything until after the first of the year. So, you may see a new address for us before too long.
til later.....
Friday, November 03, 2006
Ghoulish Tales and Updates
It took Tod and I many long hours of cutting, painting, gluing and fighting over creative differences to make the boys' costumes. Only to have most of the bones fall off 15 minutes before it was time to leave for school! AAAHHH! Talk about a scare!! We got to school just in time for the parade with bones still coming off and being taped with packaging tape.
Trick or treating was a bit of a let down. Tod said the neighborhood was a ghost town (pun intended) but the boys still seemed to enjoy it. The only problem is they still have trouble with timing and say "Trick or Treat" after they ring the door bell but before people answer the door. Oh well, maybe next year. I'm also ready to cave in and buy costumes next year. When I was a kid, a store bought costume was a thin, one piece jumpsuit thing with a plastic mask held on with elastic. The costumes are soo extravagant now and I would say 90% of the school kids had store bought costumes. Some of my favorites were the sumo wrestlers, the go-go girls (not too trashy, please!), the fairies and the pirates!
On the job front, Tod has an interview with a company in Fresno Monday. He's trying not to get too excited about it, but it is a move in a different direction for him. Plus the SD in Fresno has a great autism program, including an autism school! The cost of living is cheaper and it is at the foothills of the Sierra Mountains and sorta near Yosemite. But it's not San Francisco or Pleasanton and we really do like it here. Anyway, keep him in your good thoughts.
I'm getting ready to list jewelry on eBay for the holidays (my user id is SHIRLEYSTUFF). After I get those up, I have a new project that Gerrie is helping me with. Look for it soon.... I hope!
til later...
Trick or treating was a bit of a let down. Tod said the neighborhood was a ghost town (pun intended) but the boys still seemed to enjoy it. The only problem is they still have trouble with timing and say "Trick or Treat" after they ring the door bell but before people answer the door. Oh well, maybe next year. I'm also ready to cave in and buy costumes next year. When I was a kid, a store bought costume was a thin, one piece jumpsuit thing with a plastic mask held on with elastic. The costumes are soo extravagant now and I would say 90% of the school kids had store bought costumes. Some of my favorites were the sumo wrestlers, the go-go girls (not too trashy, please!), the fairies and the pirates!
On the job front, Tod has an interview with a company in Fresno Monday. He's trying not to get too excited about it, but it is a move in a different direction for him. Plus the SD in Fresno has a great autism program, including an autism school! The cost of living is cheaper and it is at the foothills of the Sierra Mountains and sorta near Yosemite. But it's not San Francisco or Pleasanton and we really do like it here. Anyway, keep him in your good thoughts.
I'm getting ready to list jewelry on eBay for the holidays (my user id is SHIRLEYSTUFF). After I get those up, I have a new project that Gerrie is helping me with. Look for it soon.... I hope!
til later...
Thursday, November 02, 2006
Wednesday, October 18, 2006
SLIDE SHOWS
The three posts below are links to slide shows from my sister, Gerrie's visit. Just click on the title and it will take you to another website that will play the slide show. Enjoy!
Tuesday, October 17, 2006
Sunday, September 17, 2006
Bowlin', Bowlin', Bowlin' - Gotta Keep a Bowlin'.....

Ethan and Dylan started Special Olympics bowling yesterday. What fun!! They got to wear special shoes and throw, or attempt to throw a bright orange ball on the floor and try to hit a bunch of pins! It was exciting. They were pretty good, too, and if they could just get a little more umph behind their throws, I'm sure more pins would fall over. But the balls were a wee bit slow and by the time they got down the lane, most of them barely touched the pins! After an hour and a half of bowling to get through 5 frames, tragedy struck! Dylan got a little bored and decided to run down the lane after the ball. Anyone who knows anything about bowling lanes knows they are as slippery as oil on ice. I went after him trying not to fall myself, but he went down hard before I could get to him and hit the back of his head on the floor. Tod had to meet me half way down the lane to get him back, because even with tennis shoes I couldn't keep my balance and hold him. Brave Dylan did buck up and finish the frame, but after that both boys were ready to go. We're going to try again next week, but it will be totally up to them if they want to continue.
Update on the school scene: Dylan is doing absolutely fantastic! He is adjusting well to the new school and the new classroom and method of teaching. Ethan on the other hand, has been quite a handful... very defiant, uncooperative and having lots and lots of meltdowns. We're working on the issue with the teacher and the behaviorist at home. There has been talk of putting Ethan back in 1st grade for part of the day since the 1st grade teacher is pretty militant, but I don't think that's the answer. It will just be more change and more adjustment for him. We'll keep you posted.
Avast, ye scalliwags! Tuesday, September 19 be
International Talk Like A Pirate Day.
Need a quick lesson? Check out
til later....
Wednesday, August 30, 2006
Second Graders!
Ethan and Dylan started 2nd grade yesterday. This year they are in the same school and the same classroom and they are sitting in desks now. They are getting so big.I was really nervous for Dylan. He has been in a completely different classroom environment up until now. And this is all such a big change for him. Plus, even though the seizures seemed to have all bu
t stopped, his behavior problems have not. I guess he caused quite a stir in the classroom today and Ethan fed on Dylan's behavior and acted up, too. The teacher knows Ethan from last year and she was really suprised at the way he acted. I hope Dylan gets into the routine. He looked absolutely stunned when he walked into that classroom. I really feel for him. So keep them both in your thoughts, please. I would really appreciate it.til later....
Wednesday, August 16, 2006
News
My mom is doing ok after her hip surgery. She did need a couple transfusions before they moved her to PA Peterson and that delayed her move by one day. She has physical therapy everyday, but is not sleeping well due to the foam wedge they have between her legs at night. Please continue to keep her in your thoughts and prayers. Thanks!
We took Dylan to a neurologist Monday. She is not a ped neuro but she can see children. Anyway, it is her opinion that Dylan is not having petit mal seizures but partial complex seizures (I think I got the name right). I guess with petit mal, most kids are only out a second or two and then continue with what they were doing with no confusion or memory of anything happening. Dylan has been just spacing out for much longer than a second or two. He is confused and upset when he comes out of it and he sleeps for a long time which is another symptom of partial complex and not petit mal. She wants him to see a ped neuro from Children's Hosp in Oakland, especially because Dylan's language and comprehension skills regress during this time. I have no idea how long the referral will take. They were supposed to send it in this afternoon. Again, I'll keep you posted.
The new school year is looming in front of us. I register the boys on the 22nd and they start school on the 29th. I have asked the teacher if we can meet with her before school starts. Ethan has met her before but Dylan hasn't. Plus Dylan will be changing schools so I want to get pictures to do a social story for him. I hope it works out for both of them to be in the same classroom. Ethan is so eager to jump in and answer questions for Dylan. We are meeting with the SD 30 days after school starts to review the placement.
Well, that's all the news that's fit to print.
til later....
We took Dylan to a neurologist Monday. She is not a ped neuro but she can see children. Anyway, it is her opinion that Dylan is not having petit mal seizures but partial complex seizures (I think I got the name right). I guess with petit mal, most kids are only out a second or two and then continue with what they were doing with no confusion or memory of anything happening. Dylan has been just spacing out for much longer than a second or two. He is confused and upset when he comes out of it and he sleeps for a long time which is another symptom of partial complex and not petit mal. She wants him to see a ped neuro from Children's Hosp in Oakland, especially because Dylan's language and comprehension skills regress during this time. I have no idea how long the referral will take. They were supposed to send it in this afternoon. Again, I'll keep you posted.
The new school year is looming in front of us. I register the boys on the 22nd and they start school on the 29th. I have asked the teacher if we can meet with her before school starts. Ethan has met her before but Dylan hasn't. Plus Dylan will be changing schools so I want to get pictures to do a social story for him. I hope it works out for both of them to be in the same classroom. Ethan is so eager to jump in and answer questions for Dylan. We are meeting with the SD 30 days after school starts to review the placement.
Well, that's all the news that's fit to print.
til later....
Monday, August 07, 2006
It Finally Happened...
Ethan finally lost his cracked, black front tooth! Well, he didn't really "lose" it. More like he pulled and twisted and yanked while it bled all over the place and came out. I am so happy to see (or not see) that thing gone. And I'm so glad he won't have to be put under and have it pulled. Yippee!That's the good news. The bad news is that Dylan started having petit mal seizures again. They started before summer school ended. We noticed the unusual behaviors about the same time his teacher and his behaviorist did. Almost the same time as last year. We've been to the pediatrician and his psychiatrist who monitors his meds. And we are still trying to get him into the neurologist. It takes so long to get to see one. There just aren't that many pediatric neurologists, Stanford and Children's Hospital are the closest, but that doesn't mean you get in to see them quickly, even though Children's has a satellite office in Pleasanton. We'll keep you posted.
Just got a phone call from Lou that my mom came through her hip replacement surgery very well. The doc was pleased with how things went. No excess bleeding, no transfusion needed. She was still in recovery when we talked, but she will be at OSF for the next 3 days and then will move to PA Peterson for recovery and therapy. Please keep her in your thoughts and prayers. She made it through the surgery, but has a long road of recovery ahead of her. Thanks!
Well, that's about all the news from here.
til later...
Saturday, July 22, 2006
Ok, so it's been a month...
... we're still here in hot, dry northern California - yesterday it was 107 at 5 pm. S'posed to be 113 today. Too hot to even put the boys in the pool. We're all just hanging out in the warm house not wanting to move much, even with air conditioning. Everyone warned us that San Francisco was so cold, but no one told us that just a few miles inland was like the Sahara Desert in summer!
The good news is that the boys started their dance class a couple weeks ago. I haven't actually stayed to watched them in the classroom. I've been good and stayed in the waiting area with the rest of the moms. This is Ethan and Dylan's time plus I want them to get used to the teacher and the other kids before I observe. Even when I stand in the doorway, Dylan keeps turning around to see what I'm doing. They have a lot of gymnastic equipment in the room every week. And the boys are always the last ones to leave, so I'm pretty sure they like it. As soon as I can, I will get in and get pictures.
Tod and I went into the city to see the "Monet in Normandy" exhibit last Sunday. It would have been a really nice day except that the SF bus system is a mess and it took us 2 ho
urs to get to the other side of town where the exhibit was. It was really an ok show... lots of ocean and boat scenes obviously since he was in Normandy. But the huge water lily paintings took your breathe away, literally. We found some kids books on Monet for the boys and Monet finger puppets, which were too funny!
Well, I need to go, I'm breaking a sweat typing so much.
til later....
The good news is that the boys started their dance class a couple weeks ago. I haven't actually stayed to watched them in the classroom. I've been good and stayed in the waiting area with the rest of the moms. This is Ethan and Dylan's time plus I want them to get used to the teacher and the other kids before I observe. Even when I stand in the doorway, Dylan keeps turning around to see what I'm doing. They have a lot of gymnastic equipment in the room every week. And the boys are always the last ones to leave, so I'm pretty sure they like it. As soon as I can, I will get in and get pictures.
Tod and I went into the city to see the "Monet in Normandy" exhibit last Sunday. It would have been a really nice day except that the SF bus system is a mess and it took us 2 ho
urs to get to the other side of town where the exhibit was. It was really an ok show... lots of ocean and boat scenes obviously since he was in Normandy. But the huge water lily paintings took your breathe away, literally. We found some kids books on Monet for the boys and Monet finger puppets, which were too funny!Well, I need to go, I'm breaking a sweat typing so much.
til later....
Sunday, June 18, 2006
HAPPY FATHER'S DAY, TOD
Rita Rudner used to tell a joke about dating men, " Is this the man I want my children to spend every other weekend with?". A funny, but cynical look at dating and marriage, it was actually a criteria for me as well. Not that I expected to divorce any one I married, but more, would this man be good to our children, if we had any? Would he be responsible, committed and loyal. Life is uncertain, we could get divorced or I could die. I would want to know that the father of my children would be there for them no matter what the circumstances. And even if we didn't have children, this was my standard for a husband.I married Tod because he was the kind of man I would want to spend every other weekend with my children, (it didn't hurt that he was funny, handsome and smart). And didn't disappoint me. He spent three months of sleepless nights walking the floors trying to calm colicky twins. And then got up and when into work the next morning. He sat with me and listened to the results of the testing by Early Intervention agency when we found that the boys were speech delayed and possibly had Sensory Integration Dysfunction. He took off work to take the boys to developmental play group. He went to the parents' group even though he was usually the only dad. Tod was a dad who was involved in his children's lives and our children's lives totally took over ours.
Then the real bomb hit. The diagnosis. What Tod calls the worst day of his life. "Your sons have autism," the developmental pediatrician said, "but don't worry, you won't be changing diapers all your life, when they are older they will be institutionalized. Sorry it wasn't better news." The doctor shook Tod's hand, headed for the door and took all Tod's dreams for his boys with him. At that moment our sons' future was snatched from their hands. It was devastating. It felt as if all hope was lost and any chance of a "normal" relationship with our sons was gone. It was hard for Tod to accept, just as it would be for any father.
Any yet, Tod kept going and keeps going. He has always gone to every doctor appointment, every school meeting. After a stressful day at work, he comes home tired and hungry. But Ethan grabs one hand and Dylan grabs the other, "camping!", "parachute!", and off he goes. It's usually after 8 before he gets to sit down and relax or eat something. Tod wrestles with them, gets up in the night with them, takes them to the park. He tries not to be embarrassed when one of them melts down in the store or can't answer the little boy at McDonald's who asks innocently, "what's your name?". Tod makes their lunch for school every morning and tucks them into bed every night. I'm not saying Tod is perfect. It is often very difficult to keep your composure or find the energy or the patience or even the hope to get through the day or not give up completely - for both of us. But Tod has been there for Ethan and Dylan no matter what. And they know it. They miss him when he's gone, fight to sit on his lap. It's always dad thy want to camp with and play tag with, read to and put them to bed. And when Tod works really late, Ethan sends him emails like, "daddy, Ethan Dylan"
The circumstances of our life are often worse than divorce or even death. But Tod has been loyal, responsible and committed to Ethan and Dylan no matter what. His love for them shows in everything he does -24/7 - every, waking, sleeping, frustrated, delighted, stressful, proud, exhausted, worried, amused, hopeful second of the day. And he's still handsome, funny and smart!!
Tuesday, June 13, 2006
Chugga Chugga! WOO WOO





Last Sunday (even though Tod had scads of work to do) we took the boys to teeny, tiny Sunol so they could ride the Niles Canyon Train to Fremont. It was about a half hour one way. Not exactly Thomas the Tank Engine, but the boys loved it! The engineer punched our tickets and we got to move from car to car - it didn't go very fast on the way there. Some of the cars were open, but we stayed in the enclosed one, just to be safe. The boys liked it just the same. Afterwards we got t-shirts and train cars from the teeny, tiny gift shop. It was a great morning.
We heard about another train that goes through the Redwoods and ends at the Boardwalk in Santa Cruz. It's supposed to be a gorgeous ride and of course, Santa Cruz is beautiful. The ride one way is over 2 hours, though, so we're not sure if that might be just a little too long for our antsy engineers, seeing as they got a little bored by the end of the trip.
til later....
Monday, June 05, 2006
Hair Today....


Hot, dry summer days are on their way. Some have made it here already. So it's off to "Cool Tops Hair Salon for Kids" to ease the heat a little for the season. Personally, I prefer men with long hair, but they are darn cute anyway, aren't they?
Tod arrived safely from Mexico with even more work to do when he got home.
There are only 2 weeks left of school, so say a prayer for us all. I have registration forms for swimming and dance for the boys - just trying to work out the schedules (hmmm--should we dance before mom's breakdown or after? ;-)
til later......
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